May is Lyme awareness month. Lyme disease, caused by a spiral bacteria related to syphilis, can be horrific, slowly crippling and is sometimes deadly. It can mimic other diseases, and can maim or kill in many ways, depending on what organs the organisms invade.
With proper care and treatment, some people seem to make a good recovery, however.
Neuroborreliosis, (neuro-lyme) mimics and may be the underlying cause of things like Multiple Sclerosis, Lou Gehrig’s, Alzheimer’s, Parkinson’s, depression, bipolar and various mental illnesses.
I remember seeing a crazy person once in San Francisco who was convinced something was crawling under his skin. He was twitching and his mind was so far gone that it was scary. At the time I thought he was on drugs, and honestly, that he would have been better off dead. Now I think he had Lyme. With treatment, people can and do make it. Tests are typically negative because there are so many strains that are not tested and because the organism suppresses the immune system.
According to Dr. Luft at SUNY School of Medicine, to make the Western Blot accurate, every genome in every currently known species of Borrelia would have to be mapped – 1800 proteins in all – a far cry from the 10 we now test. More alarming, studies at the SUNY Medical Center have proven that Lyme spirochetes can infiltrate the central nervous system within 24 hours of infection, so even though neurological symptoms may take weeks or months to appear, the number of victims is certainly much higher than presently recognised.
Lyme Disease is a bigger threat in Bay Area than documented.
If you have a minute, see if you can come up with a list of things that kill the Lyme bacteria, Borrelia burgdorferi, Bb. Email firstname.lastname@example.org or leave a comment. The life you save makes be your own, as Lyme has reached epidemic proportions. There is some limited evidence that it is an STD that was perhaps originally spread by birds from Plum Island near Lyme Connecticut.
Lyme is the most likely explanation for my recent symptoms and history:
- My fiancé was woke up in a cabin in California covered with 50 ticks and she had the red bull’s-eye rashes. She never took antibiotics. She had the symptoms I am having now in the months leading up to her death.
- A formerly positive anti-nuclear antibody (Sjogrens SS-B) I had previously in multiple tests has miraculously gone negative. This is supposed to be impossible, and it shows a likely immune system antibody production compromise.
- I’ve recently gained 20 pounds reaching a record high for me. I never made much insulin because I have an antibody (IA-2), which is involved in type 1 diabetes, that attacks my pancreas, but now with my immune system compromise, it seems my pancreas is not attacked, so it makes plenty of insulin, and I gain weight.
- Slight joint stiffness in the morning in late March that went away with movement got progressively worse. X-rays and blood tests ruled out osteoarthritis and autoimmune disease. I was diagnosed as having nodules of unknown origin on my tendons by a Rhematologist. White flecks under only that thumbnail, and none of my other 19 finger or toenails, shows physical damage.
- Laughing for an hour to increase NK cells, part of the innate immune system, resulted in a new symptom, a burning in my palms the next day.
- Within two months, joint stiffness spread and progressed to numbness, burning of hands and feet, cold feeling hot to the touch, sharp needle like pains in random places at night, and creepy crawling feelings deep in my flesh that wake me constantly.
- What began as small twitches of the thumb (with a quick periodicity that matches that of a spiraling spirochete), moved to twitching fingers and face and then full body convulsions affecting my ability to speak for several minutes.
I could not sleep last night, nor much the last three or four nights. Imagine someone shaking your body and poking you with sharp objects when you try to sleep. Here’s the scene with my ER doctor:
I said, “I know what this is. I mean it isn’t, because I know where I am, at a Kaiser ER, but it’s pretty obvious. Two month acute progressive joint stiffness, peripheral neuropathy, tremors, sleep disturbance from crawling feeling under the skin.”
The Kaiser ER doctor said, “You think you have Lyme.”
I said, “My years of positive ANA just went negative.”
Her tone was as if addressing another doctor when she said,
“I saw that, I’m so sorry.”
That was enough confirmation. She knew I was in for a potentially very bad ride. Most people would think it was great that a former autoimmune condition miraculously resolved. She knew I knew exactly why it was not great.
My evidenced-based ER doctor wanted to see if she could order the IGG blood test to confirm the suspicion but Kaiser wouldn’t go for it. They aren’t allowed to look to see if the immune system is broken, it seems. I could hear part of the conversation outside my room between the doctors. “We can’t have a look?” It’s the politics, not the cost of the test. The IgG test from Quest Diagnostics costs a local non-Kaiser hospital $6.83, I was shown. The IgG subgroups test (Riggs) is about $40.
Update: My Kaiser Rheumatologist did agree to order the IgG and Riggs panel, but pointed out that my blood protein electrophoresis was normal so she doesn’t expect anything unusual. My first test from Kaiser was not normal. I have below normal IgG2 and IgG3. This was confirmed by another lab a few days later.
The ER drew my blood and tested for electrolytes which were fine. The Syphilis test was negative. (Syphillis is caused by a different spirochete which can have similar symptoms and would require a different antibiotic, penicillin.) Also no Hepatitis B or C, and no HIV, all of which could cause some strange nerve problems.
My constant subtle tremor kept the EKG from working. My nerves were so twitchy, even when I was still, that the electrical activity of my heart was hard to read. When they did finally get a read, the ER doctor said the Lyme bacteria had not damaged my heart.
Lyme spirochetes disable the adaptive immune system so it does not produce antibodies. This, in addition to burrowing in your tissues, and shedding decoys all over your tissues, shedding its cell wall in the presence of antibiotics, and making spores, is how it hides. It hides in lymph nodes according to 2011 research. Antibody tests for Lyme after a certain time are generally negative. My Kaiser ELISA (an antibody test) for Lyme spirochete was negative, but they at first refused to test to see if the reason it is negative is because ALL antibody production is surpressed.
Hypogammaglobulinemia is a type of primary immunodeficiency disease in which not enough gamma globulins exist in the blood (thus hypo- + gamma + globulin + -emia). This entails that not enough antibodies exist, which impairs the immune system. Hypogammaglobulinemia is a characteristic of common variable immunodeficiency.
My total IgG is within normal range, but the subtype test shows immune system compromise. This means you can get a host of odd symptoms and sensitivities.
Bb has been demonstrated in vitro to both inhibit and kill B- and T-cells, and will decrease the count of the CD-57 subset of the natural killer cells
A complete IGG antibody test with tests for subtypes 1,2,3&4 will show immune system production. IGeneX does the full Lyme panel.
Researchers have discovered a new species of bacteria that causes Lyme disease — the second species known to transmit the potentially debilitating illness in North America.
The newly identified bacteria is called “Borrelia mayonii,” in honor of the Mayo Clinic researchers who assisted with the discovery, along local health departments and scientists at the U.S. Centers of Disease Control and Prevention.
The bacteria species was discovered after six people with suspected Lyme disease ended up with unusual results and researchers did extensive genetic testing to determine that the patients were infected with a newly discovered bacteria. Previously only “Borrelia burgdorferi” was known to cause Lyme disease in North America, according to the study published Monday in the medical journal The Lancet.
Kaiser is a business. If you have that health coverage and suspect Lyme, use Kaiser to handle emergencies and to rule out other things like syphilis, HIV, hepatitis B and C. Due, many suppose, to the expensive long term treatment required, Kaiser refuses to recognize chronic Lyme exists. This is, of course, criminal. It adds insult to injury and it puts their doctors in an ethical bind, play ball, ignore evidence, or lose your license. Hopefully this will one day change.
For now, I have found an expensive Lyme Literate MD who will prescribe antibiotics and who knows the co-infections and how to treat them.
Some people say antibiotics, however, after certain point never really work and can make it a lot worse, like years of hell, no real life improvement, even with daily IV antibiotics. Then again, doing nothing at this rate will soon drive me mad and kill me. Four months of oral doxycycline seems worth a try. Is that my best bet?
While I can still read and think, what kills Lyme spirochetes? Or what least makes them go dormant?
One of the most horrific things is that as soon as you try to sleep, the spirochetes (or some coinfection) goes active. My feet start burning, then the heart speeds up, sensing a threat, to keep the invaders from settling in the heart tissue.
The threat is real. My fiancé’s former lover died of a sudden heart attack, and the CDC says Lyme can cause sudden cardiac death:
Pathologists and medical examiners should be aware that Lyme carditis can cause sudden cardiac death. Health-care providers should ask patients with suspected Lyme disease about cardiac symptoms, and conversely, ask patients with acute, unexplained cardiac symptoms about possible tick exposure and symptoms of Lyme disease.
This is why Lyme symptoms get a “stress” diagnosis. Well, yes, the spirochete (or co-infection) stresses your body, then you have distressed thoughts, but I convinced the racing heart has a physical cause. There are too few real scientists among doctors. If I take anti-microbial and don’t have the racing heart, jitters, itches and other symptoms, then skip it and do, then take it and don’t, and get the same results repeatedly, it seems a good bet to me that a microbe is causing my symptoms at night, not my thoughts.
The bacteria can make sleep impossible, eventually killing you. My fiancé had this problem. Now I understand what she was experiencing. It wasn’t her thoughts making her heart race, it was the little burrowing corkscrews. I’m pretty calm now, all things considered, but it still happens every time I try to sleep. Right now, I feel like I might not ever be able to sleep again.
My only hope of surviving the next few weeks, assuming all my assumptions are accurate, seems to be to kill the bacteria or make it go dormant.
I just need them to let me sleep. Time to science this thing.
I just tried one oz of Angstrom nano silver, magnesium, L-Carnitine, CoQ10, and NAC (a precursor to glutathione,) then I drank a lot of water and took a strenuous walk to get the lymph flowing and flush out toxins. I got home, set my meditation timer to infinite and after about 18 minutes, I fell asleep! Glorious little victory. I got 5 hrs sleep starting in the afternoon and woke up at 10 pm.
Maintaining optimal health seems the best weapon. Repair the damage as it happens, stay as healthy as possible, break up Lyme biofilm so the immune system gets to as many of them as possible, flush them out. Now I know why my fiancé had so many different supplements. It’s a marathon race, a long fight to the death with the corkscrew beasts.
XENO’S LYME HEALTH LIST
The items below are helpful, supposedly. My approach is to start the free low risk things right away and to stick with them. I also think you should know the “why” and the risks for each thing you try.
- Correct sleep – 7 to 9 hrs/night. Esp. need the few hours before midnight. The brain shrinks at night and fluid cleans out the junk.
- Daily walking (>1hr) and movement/exercise and plenty of water to flush out toxins. The lymph system is your body’s garbage collector for the fluid that bathes all of your cells. It requires moment to push lymph though one way valves.
- Exercise oxygenates the blood and kills spirochetes, which cannot survive in a high-oxygen environment.
- To improve oxygen levels breathe in a long, deep, full breath through your nose, allowing your inhalation to slow a bit, so your body exchanges oxygen and carbon dioxide in your blood, then purse your lips as you exhale to allow a controlled amount of air to leave your body at time, as if blowing out a cake full of candles. Exhale fully to get rid of the carbon dioxide. (This felt great but did not change my pulse O2.)
- Nine days at a high altitude, some place like Peru. – some say the altitude change causes the bacteria to burrow and they feel worse. If you acclimatize and have more O2 in places you normally don’t, you make more red blood cells, and make an enzyme that causes release of more O2 into tissues all of which could help kill off the spirochetes.
- Hyperbaric oxygen treatment
- Low sugar diet to avoid intestinal yeast.
- Oxidative treatments ( intravenous vitamin C, hydrogen peroxide, UV blood irradiation, and small particle silver).
- Angstrom nano silver, 1 oz in AM and PM with meals. Silver kills Lyme on contact by oxidation faster and with less side effects compared to antibiotics. Stomach acid makes ionic silver resulting in silver salts which enter the blood.
- Stevia Leaf extract kills Lyme bacteria better than some antibiotics. As an individual agent, it is effective against all known morphological forms of B. burgdorferi.
- Fresh air, open all windows, air out rooms. Reduces mold reactions.
- Wash all clothes and bedding in hot water. Avoid sharing clothes and bedding.
- Steam heat clean carpets and drapes.
- Diatomaceous earth: wear a dust mask, sprinkle pesticide grade (not pool grade) on carpet and bed, then vacuum up. It’s non toxic, made of fossilized sea creatures, and very long lasting. Kills pests and keeps them away!
- Garlic: anti parasite, anti fungal, helps remove heavy metals
- Olive oil – antibiotic, protective
- Olive leaf extract – very powerful natural antibiotic, antiviral, antifungal, and antiprotozoal. Broad spectrum activity against many microorganisms and is beneficial to the immune system. It can also be used against Candida infections.
- Cilantro – a natural chelator for heavy metals
- Serrapeptase to break up excess protein, inhibit and destroy Lyme biofilms according to double-blind randomized studies. Also dissolves coagulated blood. Can release toxins and emotional reactions. Warning: powerful anti-coagulant. If cut while taking this, call doctor immediately.
- Nattokinase to break up fibrinogen.
- Wobenzyme Systemic enzyme supplementation (aka as Wobenzym) a non-pharmaceutical antibiotic has proven highly effective and without side effects. Systemic enzyme supplementation offers many healing properties which benefit Lyme Disease sufferers.
- Doxycycline: Antibiotics must be intra and extra cellular. Doxycycline and erythromycin work inside the cell, but a small fraction of cells in Bb biofilms were unaffected after prolonged antibiotic treatment. Doxycycline (250 µg/ml) was very effective in eliminating the spirochetal form of B. burgdorferi, but it significantly increased the round-body forms.
- Pulsed antibiotics, to kill persisters when they emerge
- Long-term oral tetracycline and erythromycin (when combined with hydroxychloroquine), knock out the infection: three to four months if the patient has been sick less than a year; 18 to 24 months if the patient has been sick for five years or more.
- Rifampin antibiotic, 300mg 2 pills 1x/day with one of: minocycline 100mg 1 pill 2 times a day, or bactrim DS 1 pill 2 times a day or azithromycin (Zithromax) 500mg 1 pill time a day.
- Mitomycin C anti-cancer drug.
- Samento Herb – (Samento and Banderol extracts) had significant effect on all three known forms of B. burgdorferi bacteria in vitro
- Oregano oil a strong anti-bacterial
- Sarsaparilla (can be dangerous, formerly used in root beer.)
- Vitamin B complex
- Vitamin D3
- Bone broth and vegetables (organic) to rebuild the body
- Krill oil – lowers inflammation and relieves Lyme symptoms
- Lithium Orotate 5mg, 1 pill 3 times a day.
- Curcumin 500mg, 1 pill 3 times a day.
- Liposomal Glutathione 500mg/5ml take 5ml 1 or 2 times a day, or less expensively, use N Acetyl-Cysteine (NAC) 500mg 1 pill 3 times a day.
- Co Q10 400mg 1 pill 2 times a day.
- Acetyl-L-Carnitine 500mg 1 pill 2 times a day for 1 month and then 1 pill daily.
- Herbal antimicrobials: Houttuynia plus Sida Acuta: Works ~70% of the time. Start houttuynia at 5 drops 2 times a day and increase daily by 1 drop per dose till at 30 drops 2 times a day. At the same time take Sida Acuta from Woodland Essence as 1/4 tsp 3 times a day and after 1 week if tolerating it increase to 1/2 tsp 3 times a day.
- Nutramedix line of herbal antimicrobials
- Lauricidin® is a concentrated antimicrobial derivative of lauric acid, a component of coconuts.
- Japanese knot-weed: immune booster
- Mangosteen fruit can be used as an effective non-pharmaceutical antibiotic.
- Grapefruit seed extract – may help treat Borrelia in cyst form. Powerful natural antibiotic that has produced herx reactions and improvement in Lyme Disease sufferers. It is also commonly used for the prevention and treatment of Candida.
- BioMat deep heating pad: Bb hates heat and would die at 106 degrees in 24 hours. If humans wouldn’t die, they would invent a pill that would heat up the human body to 106, but that would be too dangerous and could kill you too. The spirochetes do have a hard time at 102F, and at 103 or 104 which may explain why B. burgdorferi is absent in the tropics.
- Saunas – 38C = 100.4F – All strains susceptibility to penicillin and ceftriaxone increased up to 16-fold by an elevation of temperature from 36 degrees C to 38 degrees C. Elevated body temperature may be particularly important in tissues where high concentrations of antibiotics are difficult to achieve.
- ICHT is an experimental treatment which involves raising the body temperature to kill spirochetes.
- Shield against microwaves. Increased virulence of Lyme disease is likely related to the dramatic increase in electromagnetic fields and microwave radiation.
- Probiotics – optimize gut flora and support immunity
- Wormwood – artemesia annua is treatment for the babesia co-infection, but because bartonella infects red blood cells also (like babs) some use wormwood to treat bartonella too.
- Teasel Root extract – Found by some Lyme Disease sufferers to be an excellent natural antibiotic option which is effective against Borrelia Burgdorferi.
- Undecylenic acid – for killing Candida and other fungal pathogens
- Barberry root – significant antimicrobial activity against a variety of organisms, including bacteria, viruses, fungi, protozoans, helminths, and chlamydia. It may also help the immune system function better. Berberine might make blood pressure become too low
- Black walnut hull – oxygenates blood to kill parasites, fight fungal infections, and fight bacterial infection
- Loratadine (Claritin antihistamine), specifically it’s metabolite, desloratadine, prevents manganese (Mn) from entering the cell wall of the bacteria and starves it. The study has so far proved Claritin effective in killing Lyme bacteria in test tubes.
- Vitamin C
More about the enemy:
The structure of the Lyme spirochete is unlike any other bacteria that has ever been studied before. It is one of the largest of the spirochetes (0.25 microns x 50 microns) It is as long, as a fine human hair is thick. Borrelia burgdorferi is a highly motile bacteria, it can swim extremely efficiently through both blood and tissue because of internal propulsion. It is propelled by an internal arrangement of flagella, bundled together, that runs the length of the bacteria from tip to tip. Like other Borrelia bacteria Borrelia burgdorferi has a three layer cell wall which helps determine the spiral shape of the bacteria. What makes this bacteria different from other species, is that it also has a clear gel-like coat of glyco-proteins which surround the bacteria. This extra layer is sometimes called the Slime Layer or S-layer. …
This means: This extra layer of glyco-proteins may act like a stealthy coat of armor that protects and hides the bacteria from the immune system. The human immune system uses proteins that are on the surface of the bacteria as markers, and sends attacking antibodies and killer T-cells to those markers, called outer surface protein antigens (OSP antigens). This nearly invisible layer is rarely seen in washed cultures, but can be seen regularly in tissue biopsies.
Do they like oxygen? Lyme bacteria are Microaerophiles.
Microaerophiles need oxygen because they cannot ferment or respire anaerobically. However, they are poisoned by high concentrations of oxygen. They gather in the upper part of the test tube but not the very top. … requires environments containing lower levels of oxygen than are present in the atmosphere (i.e. <21% O2; typically 2–10% O2)
This explains why my fiancé felt better after injecting IV ozone gas into her veins. I strongly protested due to concern about embolism and later learned that this might break the blood brain barrier, letting things into the brain that shouldn’t get in.
Do you know anyone who got rid of Lyme? What worked?
Leave a comment or reply to this email.
This article will be updated, if I’m able. Brain fog is already setting in.
5/8/17 2:30 am. The twitching, headache and pains are increasing and I feel it messing with my automatic breathing as it attacks my nervous system. Not long now? What will be will be.
5/8/17, 7:30 am. Yes, Angstrom silver seems to be letting me sleep! First 5 hrs, then an additional 4 hrs. Woke with a cold sweat around my neck. Arm tremors were nutty this morning and tinnitus super loud, but I’m still breathing. Going in for the IGG tests, full Lyme panel and test for co-infections this AM.
5/8/17, 9:30 pm, the itching in my legs and crawling in my lip started again, eyes inflamed, exhausted. Pin pricks at random. Tried the avoid supplements tonight, but gave in and took them (just two) when the attack happened. Right hand cramping. Face twitches, left shoulder itch, crawling itchy feeling in chin, itch on back, inside neck on left, right upper lip, right temple, left thigh, left pectoral, left toes cramping, left jaw under ear, left cheek, left ear … all in quick succession. No way I will sleep tonight if this continues. Trying…
5/9/17, Took supplement and it worked. I slept again, but still had the creeps in the morning. Wash clothes, bedding, everything in hot water! Steam clean carpets. Took only 1/2 supplement in AM and by 11 was jittery with brain fog. Took the other 1/2 and nerves calmed down again. Scary. Keep it asleep or it eats your brain.
5/10/17 – Took 3/4 supplement with dinner, had tremor and some itching around 10:30 when going to sleep, but it went away after a few minutes and I was able to sleep. Seeing a neurologist today. Had a test for long cancer called anti-hu since I’ve long had a wheeze in my lungs and lung cancer can cause peripheral neuropathy. Lyme is just an educated guess. The neurologist said all is normal and I should consider counseling for stress. I feel fine emotionally, but grief in 2016 could have damaged my immune system. I find it I nteresting that when I take an antimicrobial, I have no sysmptoms of this supposed stealth stress.
5/12 – Crazy random painful itches appearing and disappearing at random places all over my body, also burning feet keeping me from sleeping tonight. Got contact info for an allergist.